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Managing Hemophilia

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As a caregiver for a child with hemophilia, you have two roles – a provider of care and a partner with the healthcare professionals involved in your son’s care.

To assist you with these different roles, this section of the Web site offers guidelines for making decisions about types of care and step-by-step instructions on care techniques, such as home infusion and self-infusion. You will also find information about treatment resources available to you and how to most effectively collaborate with the many healthcare providers in your child’s life.