Intended for US audience only.
Additional References
Blanchette VS, et al. Central venous access devices in children with hemophilia: an update. Blood Coag Fibrin. 1997;8(suppl 1):S11-S14.
Bush PJ, Ianotti RJ. "A Children’s Health Belief Model," Med Care, 1990, Vol 28 (1):69-83.
Chernecky C. Satisfaction versus dissatisfaction with venous access devices in outpatient oncology: a pilot study. Onc Nursing Forum. 2001;28:1613-1616.
Hadaway L. Choosing the right vascular access device, part II. Nursing Library. July 1999.
Haynes, RB. Compliance in Health Care, John Hopkins Press, 1978, pp 1-18.
Hemophilia: Current Medical Management. Publication of NHF.
Jones P. Living with Haemophilia. 5th edition, Oxford University Press; May 2002.
Journeycake JM, et al. Catheter-related deep venous thrombosis in children with hemophilia. Blood. 2001;98:1727-1731.
Kelley LA. Raising a Child with Hemophilia. King of Prussia, Pa: Aventis-Behring L.L.C.; 1999.
Kyngas, H. "Conceptual Analysis of Compliance," Journal of Clinical Nursing, 2000, 9:5-12.
Lathrop J. Which central venous access device to use: weighing the options. Kelley Communications. The Parent Exchange Newsletter. May 2001.
Legunn J. A mother relives emotional trauma of making a critical choice for her son. Hemophilia & Other Bleeding Disorders. Vol. 2, No. 1, Spring 2001.
Manco-Johnson MJ. "Family Issues in Continuous Infusion Therapy," Blood Coagulation and Fibrinolysis, 1996, Vol 7 (suppl 1):S21-S25.
MASAC Recommendations. Publication of NHF.
McClure W, et al. Using an implantable venous access device (IVAD) at home. Northern Alberta Comprehensive Hemophilia Centre, University of Alberta Hospital, Edmonton, Alberta, Canada. December 2000.
National Hemophilia Foundation Medical and Scientific Advisory Council. Recommendation #115. MASAC recommendations regarding central venous access devices including ports and passports. Adopted June 9, 2001.
Perkins JL, et al. The use of implantable venous access devices (IVADs) in children with hemophilia. J Ped Hem/Onc. 1997;19(4):339-344.
Physical Therapy in Bleeding Disorders. Publication of NHF;2000.
Poirier S. "Optimizing Adherence to Pharmaceutical Care Plans," Journal of the American Pharmaceutical Association, 2000, Vol 40, No 4:475-485.
Rapaport L. "Pediatric Compliance and the Roles of Distinct Treatment Characteristics, Treatment Attitudes and Family Stress: A Preliminary Report," Journal of Developmental and Behavioral Pediatrics, 1995, Vol. 16, 5:350-358.
Sansivero GE. Why pick a PICC? What you need to know. March 1998.
Shapiro AD, Donfield SM. Infectious complications of central venous access devices (CVAD) in children with haemophilia. Haemophilia. 2000;6:271. Abstract 18.
The Hemophilia Handbook. 3rd edition, Atlanta, Ga: Hemophilia of Georgia, Inc.;1999.
Treatment of Hemophilia: Current Orthopedic Management. Publication of NHF:1995.
Weiss HM. "Compliance in a Comprehensive Hemophilia Center and Its Implications for Home Care," Family Systems Medicine, 1991, Vol 9, No 2:111-120.
What You Should Know About Bleeding Disorders. Publication of NHF; 2000.
Yee TT, et al. Experience of prophylaxis treatment in children with severe haemophilia. Haemophilia. 2000;6:271. Abstract 19.
