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Children Getting Ready for School

For parents of children with hemophilia, it's important to give yourself plenty of time to prepare for your child's first day of school.

Tips On School Planning

If possible, have a nurse from your treatment center join you at this meeting to provide information about hemophilia and answer any questions that school personnel may have.

As a parent of a child with hemophilia, you should also discuss the responsibilities of each member of your child's learning team, which includes the child, parent or guardian, teachers, and the school nurse.

Interacting With The Treatment Center

Ask your treatment center nurse to bring the Baxter Hemophilia School Toolkit, which includes helpful tips and resources for you, your child, and the school staff.

You'll also want to bring a copy of your child's individualized health plan (IHP), which typically includes information about your child's health history as well as specific procedures for responding to hemophilia bleeds and other injuries. (View a sample IHP.)

Understanding Your Rights

Under Section 504 of the Rehabilitation Act, schools must provide the same education to children with disabilities as they do for other children, and make adjustments if necessary.1 If you feel that your child is not receiving the accommodations he needs, request a copy of the Section 504 Plan from your State Education Department or your local school district.

For more information about how you can prepare your child for school, talk to your treatment center.

Note: ThereForYou.com does not recommend a particular treatment for specific individuals and recommends that you consult your treatment center or physician before pursuing any course of treatment.

Note: Links to external websites are provided for your convenience. However, they lead to websites not created, managed, or maintained by Baxter Healthcare Corporation. Baxter is not responsible for, and does not necessarily endorse, the opinions or therapeutics represented on these external pages.

References

  1. Section 504 of the Rehabilitation Act. Section 508 of the Disabilities Act website. http://www.section508.gov/index.cfm. Accessed June 8, 2011.
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