Children Hemophilia and Your Baby
As a parent, learning that your child has hemophilia can be overwhelming. When your child is a newborn, you may feel a wide range of emotions, from sadness and worry to fear and denial.
If you are the parent of a child with hemophilia or have a loved one with hemophilia, this section provides information about some of the emotions that you may feel when your child is first diagnosed with a chronic disease, along with some helpful tips for dealing with these emotions.
Hemophilia Support For Emotions:
Sadness Or Worry
Learn as much as you can about hemophilia so that you will be better able to handle it.
If you've never known anyone with hemophilia, you might be scared that you won't be able to protect your child from getting hurt. It is helpful to talk to other parents who have faced similar challenges successfully.
Because hemophilia is a genetic disease, sometimes parents feel guilty that they "caused" the illness. Mothers can be especially susceptible to these feelings, since mothers are carriers of the hemophilia gene. It's important to remember that neither parent is responsible for the child’s illness.
Because it's too painful, some parents initially refuse to believe or admit that their child has hemophilia. They want to believe that the doctors are wrong and that the condition will just disappear if they ignore it. This reaction, while understandable, can be dangerous if it prevents parents from providing the child with the treatment he needs.
In the beginning, parents always experience the fear of the first bleed—waiting for it, being nervous about it, and then dealing with it. It's important to strike a balance between being overprotective and being too relaxed, because this is an issue you'll be dealing with again and again. While working through the conflicting emotions of this stage, don't try to deal with the situation alone. It's important to develop relationships with people and organizations that will help you and your child, such as your local treatment center.
Note: ThereForYou.com does not recommend a particular treatment for specific individuals and recommends that you consult your treatment center or physician before pursuing any course of treatment.