Intended for US audience only.
Treatment Centers1
Since 1975, treatment centers have been helping patients and families manage every aspect of living with hemophilia, from providing information about the latest medical developments, to organizing support groups for parents and teens.
What is a treatment center
Treatment centers are part of a regionalized system of care with locations throughout the United States and the world. They are staffed by a Care Team of experts trained in hemophilia who help patients and families access a wide range of education and support services. Although services may vary by treatment center, the following are some of the services typically offered through a treatment center:
- Medical treatment
- Education
- Psychological and emotional counseling
- Advocacy with insurance companies
- Research studies and clinical trials
- Support groups
- Education on hemophilia for school teachers and day care staff
- Home infusion instruction and support for parents and children
- Genetic counseling
- Safety network for traveling families
- Summer camps for children with hemophilia
Benefits
Treatment centers do more than bring peace of mind to patients and families — studies have shown that they might actually help people with hemophilia to live longer. One recent study found that patients, who received their care at a treatment center versus another healthcare setting, had a 40 percent reduced mortality rate.2 To learn more about the benefits of treatment centers, visit Benefits and Services.
References
- National Hemophilia Foundation website. Available at http://www.hemophilia.org. Accessed August 5, 2008.
- Soucie, J., Nuss, R., Evatt, B., et al. (2000). Mortality among males with hemophilia: Relations with source of medical care. Blood, 2000(96), 437-442.
